Kelly Koep Suffers From Ehlers-Danlos Syndrome

LANHAM, MD - JANUARY 01: One side-effect of Kelly Koep's EDS is that her skin is very elastic due to the breakdown in collagen levels. Kelly Koep suffers from Ehlers-Danlos Syndrome, a rare genetic disorder that affects the synthesis of collagen. Kelly has a very severe form called hypermobility and the cartilage in her body literally cannot hold her bones together and the spinal cord and brainstem damage requires her to wear a neck brace at all times and be transported by a wheel chair. She recently learned that her vertebral arteries are getting compressed to the point that blood flow is affected, increasing the risk of stroke and sudden death. She came to the area for surgery to fuse her C-1 and C-2 vertebrae with titanium plates and bolts. Shes hoping the surgery will allow her to walk again. Dr. Fraser Henderson will perform the surgery. (Photo by Michael S. Williamson/The Washington Post via Getty Images)
LANHAM, MD - JANUARY 01: One side-effect of Kelly Koep's EDS is that her skin is very elastic due to the breakdown in collagen levels. Kelly Koep suffers from Ehlers-Danlos Syndrome, a rare genetic disorder that affects the synthesis of collagen. Kelly has a very severe form called hypermobility and the cartilage in her body literally cannot hold her bones together and the spinal cord and brainstem damage requires her to wear a neck brace at all times and be transported by a wheel chair. She recently learned that her vertebral arteries are getting compressed to the point that blood flow is affected, increasing the risk of stroke and sudden death. She came to the area for surgery to fuse her C-1 and C-2 vertebrae with titanium plates and bolts. Shes hoping the surgery will allow her to walk again. Dr. Fraser Henderson will perform the surgery. (Photo by Michael S. Williamson/The Washington Post via Getty Images)
Kelly Koep Suffers From Ehlers-Danlos Syndrome
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Credit:
The Washington Post / Contributor
Editorial #:
477760485
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The Washington Post
Date created:
01 January, 2014
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Object name:
KELLY